Quick update: Matthew had his cardiology appointment yesterday. His echo looked worse than the previous week. We began a more intense treatment for his rejection. He was started on high dose steroids which we will begin to wean in 5 days very slowly. Maybe it's in my head, but I swear he's already getting puffy! I'm not looking forward to his "roid" rage that is so often associated with taking a lot of steroids. My sweet, mild tempered baby turns into a completely different person. He is on all kinds of prophylaxis drugs again. I am hoping and praying that this will work!! We follow up with cardiology next Thursday and they want to do another heart biopsy in a few weeks.
Please keep Matthew in your prayers!! We love you all and appreciate your love and support!