Things have been pretty good and stable since the last biopsy. These past two weeks we've been chasing Matthew's Prograf level, but we are hoping to get that stabilized soon. Matthew goes in for surgery on Tuesday to get his Peg tube (gastric tube) placed. It's suppose to be an overnight stay- I'm dreading it! Who knows what kinds of memories this experience will dig up... poor little Matthew! He's getting a Peg tube because he is still not eating at all. Since his transplant, Matthew gets all of his nutrition through his NG tube. He is finally gaining weight, but we keep praying he will some day gain weight because of what HE is putting in his mouth not because of what we put down his tube. We are hoping that any food aversions, discomforts, or gastric reflux that can occur with an NG tube will go away with a Peg tube and that he will magically start eating like a champ again. We'll see... it's okay to dream right? Please keep him in your prayers!
Now that his heart is looking good, the cardiologists are wanting to focus on Matthew's kidney issues that have always taken a back seat to his heart issues. Matthew has ureteral reflux which has not improved since birth. We will go in for some testing on November 2nd to see if the reflux has improved since our last test about 6 months ago. Reflux usually does not improve in 6 months so mentally we are planning on another surgery for that before the year is over.
Matthew's next biopsy will also be in early November sometime. We are hoping to find normalized pressures and NO rejection!!
It looks like it is going to be a busy Fall! We have enjoyed these past few weeks- the calm before the storm, I guess. Matthew is one tough little guy! Our kids all got the flu shot this week and you would've thought the end of the world came right in the Dr's office-- Matthew just keeps plugging along and takes life as it comes dealing with everything wonderfully. We sure love all of our kids!