We made it through our first day at home! Yesterday we FINALLY got discharged at about 7:30 and it is really nice to be home. Today I feel like my whole day consisted of filling syringes with various medications, putting them down Matthew's NG tube, and then cleaning the syringes. He's on 13 medications and gets meds 5 times a day-- so literally, that's what I did today.
Tommorrow is our first appointment at PCMC and they say that everything we need to do will take 3-4 hours. We just can't seem to really get away from the hospital I tell you. We are hoping things are still smooth sailing. I'm sure they will be. We recognize how very blessed we have been. Matthew is such a miracle and we love him so much. Now we just need the brothers home. Matthew started to cry when he talked to them on the phone today. He said he wants Josh and "Gook". It broke my heart! It will be a happy day when we are all home together!!