It is Monday morning and another week is ahead of us. It has been raining all night and this morning we woke up to snow! It is may 24th for crying out loud. All of our beautiful petunias are going to be dead! (Isn't it weird to think about the things we worry and think about?)
Matthew is about the same today. The lights are on but it doesn't seem like anyone is home. He is actually a little bit better. He is moving more and when they pulled his one remaining mediastinal tube out he actually flinched and tried to cry. Can you imagine what it must be like to be in enough pain to cry but not be able to? There were tears in his eyes. His epicardial pacemaker leads were also removed as was his arterial line. The only lines remaining are his Foley (if he could pee on his own that would come out too), a PICC (peripherally inserted central line), a small peripheral IV, and his NG tube. It is so nice to be able to pick him up and hold him. He is in Chrissy's arms as we speak and has fallen asleep again.
Our working diagnosis for the mental status change at this point is medications. For those of you in the medical field it is like his speech is locked in but everything else is okay. He got his last dose of thymocyte yesterday . . . it is a drug isolated from rabbits and as far as I am concerned reminds me of the Wii game my son Joshua plays: Rabid Rabbits. I hope that it is as simple as a medication that just needs to wear off. What a terrible thing to have a new heart but no brain. I just want him to be better.
We also heard some more good news this morning regarding the trailer spot that we are in. Originally they said that we could only have it for 3 nights. Amazingly and miraculously Bishop Flannery met someone as they were pulling out who said that they were leaving about two weeks early. Our first text message this morning was from the Bishop and we now have a place to stay until the 31rst. Thank you Bishop. You have gone above and beyond and another tender mercy has been provided.
The whole experience has been an amazing sequence of miracles and blessings intermixed with challenges and stress. My prayer today is to hear Matthew call out for Deedaa one more time. Only time will tell. We love and appreciate all of you. Thanks for your support.