My wish came true last night when I heard Matthew call out for Deeda. What a simple gesture with an enormous impact. It was so good to see him again. I left the hospital on Wednesday afternoon to attend Joshua's last baseball game and because I was planning on working on Thursday. To come back to a giggling, talking little boy was wonderful. Despite his grumpiness and reflexive reactions it was certainly an upper to my day.
Overall, Chrissy tells me that he was pretty grumpy yesterday. They warned us about days like these. They seem to have one good day: wear themselves out - then the next day is like living with Frankenstein. Last night we brought all of the boys up to visit Jr. and to have a sleep-over in the trailer. Needless to say, at about 8:00pm Matthew got a finger in his nose and pulled out his NJ tube. Now it is a very expensively placed NG tube. His reponse: Sorry Mommy. He is so sweet when he is himself. Can you blame the guy for trying to pick his nose?
The night was again frustrating. The over-achieving tech was either trying to check out my hot wife or doesn't understand the value of a rested child. Either way, they really need to learn the power of a drug called "sleep". It was an in and out kind of night and the morning always comes too early.
The changes are starting to be seen on Matthew. His face is more full and his cheeks are puffing out. It is probably too early for this to be the prednisone but who knows. Maybe it is just nutrition for a change. He is definitely getting stronger and healing from all of his surgeries.
I want to personally thank all of my partners and all of the people that i work with at Utah Valley Regional Med Center. The response that I received in going back to work was overwhellming. Thank you for supporting me and helping my family to make it through this ordeal. I was on the brink of tears most of the shift. You have all been amazing and I am thankful for that. I cannot believe how many people had read this blog and were genuinely concerned for our family. I love my work and your hearts have made UVRMC and even better place to live and work. Thank you.