Saturday, May 29, 2010

My wish came true last night when I heard Matthew call out for Deeda. What a simple gesture with an enormous impact. It was so good to see him again. I left the hospital on Wednesday afternoon to attend Joshua's last baseball game and because I was planning on working on Thursday. To come back to a giggling, talking little boy was wonderful. Despite his grumpiness and reflexive reactions it was certainly an upper to my day.

Overall, Chrissy tells me that he was pretty grumpy yesterday. They warned us about days like these. They seem to have one good day: wear themselves out - then the next day is like living with Frankenstein. Last night we brought all of the boys up to visit Jr. and to have a sleep-over in the trailer. Needless to say, at about 8:00pm Matthew got a finger in his nose and pulled out his NJ tube. Now it is a very expensively placed NG tube. His reponse: Sorry Mommy. He is so sweet when he is himself. Can you blame the guy for trying to pick his nose?

The night was again frustrating. The over-achieving tech was either trying to check out my hot wife or doesn't understand the value of a rested child. Either way, they really need to learn the power of a drug called "sleep". It was an in and out kind of night and the morning always comes too early.

The changes are starting to be seen on Matthew. His face is more full and his cheeks are puffing out. It is probably too early for this to be the prednisone but who knows. Maybe it is just nutrition for a change. He is definitely getting stronger and healing from all of his surgeries.

I want to personally thank all of my partners and all of the people that i work with at Utah Valley Regional Med Center. The response that I received in going back to work was overwhellming. Thank you for supporting me and helping my family to make it through this ordeal. I was on the brink of tears most of the shift. You have all been amazing and I am thankful for that. I cannot believe how many people had read this blog and were genuinely concerned for our family. I love my work and your hearts have made UVRMC and even better place to live and work. Thank you.


  1. We are happy to see our little buddy is coming along so well and we are glad for your family as well. It has been a pleasure to work with you and I am glad to call you a friend, will see you back in clinic. We will continue to pray for you guys!!

    Rachel and family

  2. Many people in the ward are reading this everyday. We are continuing to pray for Matthew and your family.

  3. you & the tech are right - Chrissy is HOT!!! Tough Guy is a fighter, so i'm not surprised he's going to be grumpy. I believe in this kid!!!! Thanx for the update, Deedaa....

    xoxox to you all, Mary

  4. My favorite is the night Tech or RN who comes in the middle of the night and turns on every bright light in the room...when everyone else on the staff can do the same work without even turning a light on. Hopefully you haven't experienced this! I'm so glad to hear that you are able to work more step towards discharge and then normalacy. Baby Matthew is amazing, and I agree with Mary's statement that Chrissy is hot! I hope the trailer party was a riot for the boys. Your family continues to be in all of our prayers.

  5. You almost immediately became one of our favorite docs. How could we not be concerned? It is almost a nightly activity here at UVRMC for everyone to check in on your little. We are all praying for your family. Oh, and what a blessing it is to see some change for the good! (Do you need some of us nurse's to go have a talk with Matthews techs?) ;)

  6. We are so happy to hear of the little guys progress. What a fighter! We will keep praying that you may come home soon and he will continue to improve daily and of course pray for more sleep!! You and your family are amazing and we think the world of your guys!
    All our love and prayers-- The Whitings

  7. Hey, can you blame a guy for wanting to check out Chrissy at all hours of the night?? :) So glad to hear that Matthew is getting stronger, and that you are getting such wonderful support from your coworkers. It'll be nice for your family to be together again too. Hope Josh and Luke enjoyed their sleepover!