Good morning. It is Tuesday May 25th and we are almost 1 week into this ordeal. One week ago Matthew was walking around talking about Daddies Big Big Red Truck and wearing oxygen around the house. Thoughts of receiving a heart were still very very distant in our minds.

Matthew is doing a little bit better this am. It seems like he is more alert and more aware of what is happening. He is still not talking but the muscles around his mouth are twitching and he is trying to smile. He just seems a little more content and the look in his eye doesn't seem as lost. He certainly recognizes Chrissy and me. He also slept pretty well again last night. He is still paying the sleep debt he owes from late last week.

He has come off of oxygen completely and his sats on room air are 98! Can you believe that? He hasn't had this good of oxygenation since he was born. Who knows maybe he has oxygen toxicity. The only lines he has now are his NG tube (nasal-gastric) to feed him and 2 Iv's and his Foley.

They are going to transfer us out of the ICU. They told us that they don't want him to get ICU psychosis . . .isn't it a little late for that? We are hopefull that they will give us the presidential suite on top of the hospital with 360 degree views of the mountains and valleys. We also need to get on top of some physical therapy. How is Matthew going to be the next Sean White (he had tetrology of fallot) if he can't walk?

If you have any questions that you would like us to address, please leave a comment on the blog and we will try to address them. Thank you again for supporting us.