It's Thursday morning and things are improving here in the hospital. The hospital staff switched some meds around and have blocked off intervals of time when Matthew can nap and sleep at night. Matthew's nurses are like bouncers sitting by his door blocking many who try to enter while he is peacefully resting. Matthew's ability to sleep has really made a huge difference in his behavior...surprise, surprise!
Matthew started communicating by using simple "yes" or "no" answers to questions he is asked. I think he is starting to feel more secure with his environment now that he is not being tortured every day. We are still having issues with keeping food down. He has an NJ tube so he is getting his oral meds and some nutrition that way. Every time we try to feed him orally, he throws up. Our goal for today is to give him pleasant things to taste to help him overcome his aversion to food. Now that many of his tubes and lines are out, I put him in his Mcqueen pj's and he was super happy.
It feels wonderful to be able to care for him like a real Mom again. I enjoy each moment I have with him! I love each day because I feel like every morning he continues to become more and more like the sweet little Matthew we know.
What we are hearing at this point is that he will have a heart biopsy on Tuesday and if all goes well he could be home as early as Wednesday. We'll see.... there are lots of ups and downs in the hospital and you never know what will happen (and when..)