Friday, May 28, 2010

Matthew had a rougher night last night. I don't know why, but he seemed a lot more restless than the night before. He is also more irritable and anxious this morning. I guess post surgically there are lots of ups and downs. Today must be one of his downs. I was just looking forward to another day of laughing together while playing peek-a-boo and trains.... Hopefully later today he'll be more playful when his brothers and Dad get here.

The highlight of the morning for me was when I started naming all kinds of choices for breakfast Matthew said yes to pancakes! He actually ate a few bites and kept the pancakes down. At least he is motivated to eat again- I think his appetite will continue to improve and we will make baby steps every day.

The transplant team is trying to make some changes with his anesthesia and painkillers while planning for his cardiac catheterization where they will take a heart biopsy on Tuesday. I don't think anybody wants a repeat of what happened last time when he was waking up from anesthesia. One of Matthew's nurses from the CICU called me this morning and said "this is Matthew's WWF nurse" because we literally spent 2 days together trying to keep him still so he wouldn't rip out lines. We will keep hoping and praying for better results next week.

In the meantime, we are overwhelmed with gratitude for the many blessings and miracles that have taken place in our lives. We know Heavenly Father loves us and baby Matthew- there are evidences of that taking place daily.


  1. I think he's just revving to go home. Let's all pray fervently that he gets the all-clear & can go home on Wednesday! Glad the pancakes are working! I wish I could take mommy out for some miso!!!

  2. Chrissy, my Birthday Wish (: this weekend is that Matthew will be healed and be able to go home real soon. Keep hanging in there. Hospital life is tough!!! We love you all so much and pray for you daily. Lots of Love, Aunt Jill

  3. Yay for pancakes! That's awesome that he's keeping something down. Let's pray that continues. Chrissy, you are such an inspiration... You've been through hell and back these past few days and you have the most incredible attitude. You are amazing! We'll be praying for you!

  4. Yipeee Matthew!! Keep the eating up! How are you Chrissy? Man, you are one tuff lady and Matt you are one tuff guy. It sounds like yall are holding it all together, big hug from the Dunhams!!

    Lots of love,
    Ginger (I'm signed in under TJ's account, oops)

  5. I just found your link to "Miracles." SO inspiring! I have chills (in a good way) reading it. It truly is amazing to hear about all of the miraculous elements of your lives that were in place in order to allow for Baby Matthew to do so well. Thanks so much for sharing!

    I'm so excited that he is keeping food down! Yeah for pancakes! Yeah for Lightning McQueen! I hope it gets a little easier for your family now that schools out, and a discharge grows nearer everyday. We are praying for you, and hope the heart cath isn't as traumatic as the surgeries.