Matthew had a rougher night last night. I don't know why, but he seemed a lot more restless than the night before. He is also more irritable and anxious this morning. I guess post surgically there are lots of ups and downs. Today must be one of his downs. I was just looking forward to another day of laughing together while playing peek-a-boo and trains.... Hopefully later today he'll be more playful when his brothers and Dad get here.
The highlight of the morning for me was when I started naming all kinds of choices for breakfast Matthew said yes to pancakes! He actually ate a few bites and kept the pancakes down. At least he is motivated to eat again- I think his appetite will continue to improve and we will make baby steps every day.
The transplant team is trying to make some changes with his anesthesia and painkillers while planning for his cardiac catheterization where they will take a heart biopsy on Tuesday. I don't think anybody wants a repeat of what happened last time when he was waking up from anesthesia. One of Matthew's nurses from the CICU called me this morning and said "this is Matthew's WWF nurse" because we literally spent 2 days together trying to keep him still so he wouldn't rip out lines. We will keep hoping and praying for better results next week.
In the meantime, we are overwhelmed with gratitude for the many blessings and miracles that have taken place in our lives. We know Heavenly Father loves us and baby Matthew- there are evidences of that taking place daily.