Tuesday, May 25, 2010

Good morning. It is Tuesday May 25th and we are almost 1 week into this ordeal. One week ago Matthew was walking around talking about Daddies Big Big Red Truck and wearing oxygen around the house. Thoughts of receiving a heart were still very very distant in our minds.

Matthew is doing a little bit better this am. It seems like he is more alert and more aware of what is happening. He is still not talking but the muscles around his mouth are twitching and he is trying to smile. He just seems a little more content and the look in his eye doesn't seem as lost. He certainly recognizes Chrissy and me. He also slept pretty well again last night. He is still paying the sleep debt he owes from late last week.

He has come off of oxygen completely and his sats on room air are 98! Can you believe that? He hasn't had this good of oxygenation since he was born. Who knows maybe he has oxygen toxicity. The only lines he has now are his NG tube (nasal-gastric) to feed him and 2 Iv's and his Foley.

They are going to transfer us out of the ICU. They told us that they don't want him to get ICU psychosis . . .isn't it a little late for that? We are hopefull that they will give us the presidential suite on top of the hospital with 360 degree views of the mountains and valleys. We also need to get on top of some physical therapy. How is Matthew going to be the next Sean White (he had tetrology of fallot) if he can't walk?

If you have any questions that you would like us to address, please leave a comment on the blog and we will try to address them. Thank you again for supporting us.

9 comments:

  1. Do you guys need anything, I am just a phone call away. Let me know what we can do to help, we say prayers for you daily. Just a laugh for you. My daughter fussed me out for not know Matts name she is quite content now to know who we are praying for other than Dr Sperrys son. Kids are the funniest things at times. I am glad things are looking up for you guys. Rachel

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  2. I am not surprised that he is getting better. It's what I've counted on. He's been through so much, that poor little guy. Hopefully, a really nice view will do him a world of good. Great pic, you all look beautiful.....xoxo Mary

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  3. I know it is a day at a time, but so glad to hear that Little Matthew is headed in the right direction and that he is doing much better than the end of last week. Say "bye" to that ICU! Our family loves and is praying for you all! (The boys tell Josh "hi")

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  4. He sounds like a tough little guy! Thinking of you guys!

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  5. SO glad he's doing better! I love that he is trying to smile, and that he recognizes you guys. Definitely good signs. That's great that you're being transferred out of the ICU... And that Matthew's oxygen level is so high! That is awesome!

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  6. So glad things are improving. Thank goodness for modern medicine and Heavenly Father's hands to care for our loved ones. Hope things continue to improve. Lots of Love. Marian

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  7. Thank you for taking time to update us through your blog. We love to check in each day and see how he is doing. Its awesome about his oxygen levels...I'm sure he won't miss that oxygen cord following him around and getting stuck everywhere when he finally gets out of the hospital. Dad just called and said that Matthew is saying a few words.....even more great news!! We love you guys tons. We are here to help however we can.
    Love Ben, Ash, and family

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  8. Matt and Chrissy we are so happy to hear he is talking!! What a relief! I smiled from ear to ear when I got the message. God does work miracles. We pray that all will continue to go well. We wish we were there and could do more. We would love to have Josh and Luke here anytime!! I will even come there. Little Matthew is continually in our prayers. Thanks for keeping us updated. We love you!!! Jill and Chad

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  9. Congratulations on 98%!!! What an amazingly, sweet thing to see (I know the feeling). Thanks for the updates, we are always reading, and re-reading your blog. Congratulations on transferring from the ICU. Hopefully he'll be in a much quieter room without all of the commotion of the ICU. You continue to be in our thoughts and prayers. We look forward to when he can be home with your family again.

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